#TeamTKC Powered by Eli's Challenge

Kendall the Brave and LivLikeAUnicorn

Our team is participating in the inaugural #TeamTKC: Powered by Eli’s Challenge 2021. All money raised will support Tackle Kids Cancer and Hackensack Meridian Health Children’s Cancer Institute, funding critical research and innovative patient care programs. Every dollar we raise will help move one step closer to a cure!

 

      Join with our team today and your donation can have double the impact with our matching gift from Eli Manning through Eli’s Challenge.

 

Click JOIN TEAM if you want to join us in raising funds and help us meet our goals.

Or DONATE to make a gift helping us fundraise in support of Tackle Kids Cancer and their mission

 

Every dollar raised, no matter the size, has an impact for children fighting cancer. Even $25 would make a big difference to support Tackle Kids Cancer and their crucial work.

 

Thank you for supporting me in raising funds for this incredible cause! Together, we can make a bigger, more meaningful impact. Below is why I want to get involved.


I introduce 2 Magical Unicorns:


"I only recently learned of this day to bring light to people who suffer from rare diseases. About a year ago, we were living our worst nightmare as we struggled to get a diagnosis for Kendall. When we found out she had anaplastic astrocytoma, a rare brain cancer, our world was shattered. Through her diagnosis we also learned that she had condition called Li-Fraumeni Syndrome, a genetic predispostion to cancer. Sadly we also subsequently learned that I passed this gene mutation on to her and Jillian. My heart is broken over this news and everyone who knows me knows there's nothing I wouldn't do to protect my babies. Unfortunately for Kendall, we were out of time to help her. As for Jillian and I, we will continue to get regular screenings to hopefully catch any developments in their early stages. It really helps to remember how to keep life in perspective and live every day to the fullest!"

"Olivia was a typical 7 year old little girl. She loved unicorns, American Girls, and playing travel soccer. A few weeks before her 8th birthday she started to complain about shoulder pain. We attributed her discomfort from a fall from snow boarding but brought her to an orthopedist to get her checked out. The doctor's opinion was that it seemed to be a bad sprain and felt that it would heal in a week or two. However, the pain continued to increase and poor Liv would wake up screaming every night. After many sleepless nights along with multiple doctors visits, x-rays, and MRIs, we knew something wasn't right. Trusting our instincts, we took Liv to the emergency room at the Children's Hospital of Philadelphia. After several hours, the doctors thought it was a nerve issue and ordered an MRI. When the results came back we were pulled into a tiny room and told that our healthy, beautiful, kind little girl had a tumor in her spinal cord. In that moment our lives were forever changed. She was admitted and booked for surgery to try to remove as much of the tumor as possible. A few days after her 8th birthday our little girl was brought into surgery which lasted 14 hours. They were able to remove 40% of the tumor but Olivia came our of surgery unable to walk or use her right arm. On March 1st (Liv’s dad's birthday), the pathology of Liv's tumor came back. We learned that she had a diffuse midline glioma with the H3 K27M mutation. Because of this mutation, the doctors upgraded to her cancer to stage 4 and said it was similar to DIPG. We were told she had an estimated 6-9 months to live, to go home and make memories.. That is when our real fight began.After 6 weeks of radiation, we threw ourselves into research to find next steps. Olivia was enrolled in a clinical trial for a new medication called Onc201. That summer we thought that we had beat the odds, Liv had regained most of her abilities, was symptom free and having tons of fun in the sun! She continued to worry about other children dealing with cancer and was inspired to organize her own fundraiser. That summer she raised over $10,000 for pediatric cancer research. We even started the process of getting her back to school.Towards the end of the summer Liv began to experience excruciating headaches which landed us in the emergency room on several occasions. On the day before she was supposed to go back to school we found out that her tumor had started to spread. She had several tumors on her spine, disease in her spinal fluid, and the ventricles of her brain. On October 6th Liv was rushed by ambulance to her treating hospital NYU, she was unconscious and had an emergency shunt placed. She never left the hospital and continued to decline. Our little girl took her last breath in her mothers arms on November 6th, 2019."


 https://www.livlikeaunicorn.org/our-story

 

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